This workshop, led by Dr. Jan Willem Gorter, explores the preliminary findings from the MyStory study, provides resources to help cope during COVID-19, and shared strategies framed around the F-Words on how to stay active and engaged!
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78 resources found
Meet Jessica (Video)
In this video, Jessica (a community advisor on cerebral palsy research and person with lived experience) and Jan Willem (a clinician researcher studying cerebral palsy) tell us about cerebral palsy, some of the misconceptions that surround it and what we can do to tackle them. Produced by the Ontario Brain Institute for Brain Awareness Week 2017.
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Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services.
Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services.
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Knowledge Broker
The purpose of this study is to evaluate the effectiveness of physical therapists, acting as Knowledge Brokers (KBs) within their own clinical facility to facilitate the clinical use of evidence-based measures of gross motor function for children with cerebral palsy.
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Language Characteristics of Children and Youth with Cerebral Palsy
Children with cerebral palsy are at increased risk for language disorders. It is estimated that 20% of children diagnosed with cerebral palsy have severe communication impairments.
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Hyperbaric Oxygen Therapy (HBOT) as a ‘treatment’ for Cerebral Palsy
Hyperbaric Oxygen Therapy (HBOT) is a technique that allows 100% oxygen to be delivered to the body’s tissues under increased atmospheric pressure. To achieve this, the patient enters a “pressure chamber” that makes it possible to increase the atmospheric pressure to “hyperbaric” levels, i.e., above the earth’s atmospheric pressure at sea level.
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Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?
Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.
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How Does Clinical Research Work? A Two-part Primer. Part 1: How to Ask a Research Question and Design a Study
Clinical and health services research in childhood disability are essential if we are to move the field forward and have confidence that what we believe we ‘know’ is in fact based on credible studies.
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How to recognize and refer children with hemiplegic (unilateral) cerebral palsy
‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.
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