The CP-NET Adult Cohort Clinical Database is designed to collect and store a large amount of information about adults living with CP. The database will contain a variety of information related to general health, mental health, assistive devices, medical history and co-occurring conditions, healthcare delivery, and open-ended questions. The study is designed to have a single timepoint, meaning participants fill in a set of questionnaires one time for a “snapshot” of their life at that time.
As individuals with CP are living longer, the goal is to help them, their families, clinicians and researchers to better understand the effects of CP on daily life, through the transition to adult life, and throughout the lifespan. The vision is for this information to help plan for future needs and ultimately to enable adults with CP to live their best life.
Clinicians are currently recruiting at 2 sites in Ontario, with the option to submit your interest from anywhere in the province using a QR code. The participants being recruited are adults with CP, who are 18 or older.