CP-NET research focuses on individuals with (and at high risk) of CP and their families all across the lifespan. We have research focused on babies, toddlers, pre-schoolers, children, youth and adults to better understand the course of CP across someone’s life.
The CP-NET Child Cohort Clinical Database is designed to collect and store a lot of information about children with all types of CP. This way, researchers and clinicians can try to better understand what causes CP and develop treatments and therapies that work in the future. We want to find ways to improve care for children with CP in the future.
Preterm birth, or being born too early, is a known risk factor for CP. As we continue following the CP-NET Neonatal group of children as they grow to school age, we can see how their epigenetic patterns might change because of how their genes interact with their environment, from birth to early childhood.
The CP-NET Adult Cohort Clinical Database is designed to collect and store a large amount of information about adults living with CP. The database will contain a variety of information related to general health, mental health, assistive devices, medical history and co-occurring conditions, healthcare delivery, and open-ended questions.