Monitoring development of children with cerebral palsy: the On Track study. Protocol of a longitudinal study of development and services.
Read Resources
52 resources found
Mental Health in Adolescents and Young Adults with Cerebral Palsy
This workshop, led by Dr. Jan Willem Gorter, explores the preliminary findings from the MyStory study, provides resources to help cope during COVID-19, and shared strategies framed around the F-Words on how to stay active and engaged!
Read Resources
Hyperbaric Oxygen Therapy (HBOT) as a ‘treatment’ for Cerebral Palsy
Hyperbaric Oxygen Therapy (HBOT) is a technique that allows 100% oxygen to be delivered to the body’s tissues under increased atmospheric pressure. To achieve this, the patient enters a “pressure chamber” that makes it possible to increase the atmospheric pressure to “hyperbaric” levels, i.e., above the earth’s atmospheric pressure at sea level.
Read Resources
Learning about the Benefits of Microboards: Danny’s Story
This was a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
Read Resources
How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?
Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.
Read Resources
How to recognize and refer children with hemiplegic (unilateral) cerebral palsy
‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.
Read Resources
Gross Motor Function Measure (GMFM) New, Shortened Versions – Move & Play
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
Read Resources
Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
Read Resources
Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
Read Resources
Genomic Copy Number Variation in Cerebral Palsy
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
Read Resources