Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
Read Resources
54 resources found
Genomic Copy Number Variation in Cerebral Palsy
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
Read Resources
Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
Read Resources
Dynamic Systems Theory: A Framework for Exploring Readiness to Change in Children with Cerebral Palsy
Dynamic Systems Theory (DST) is a theory of motor development that can be applied to the management of children with Cerebral Palsy.
Read Resources
Disability and Child Development: Integrating the Concepts
The purpose of this Keeping Current is to review the concern that, rather than being integrated, these two streams (“development” and “disability”) of thought have traditionally run more or less in parallel.
Read Resources
Designing Action-based Exergames for Children with Cerebral Palsy
Exergames are a promising way to allow children with CP to participate in physical activity, permitting adaptations of exercise equipment and video games. In this In Brief, researchers tried to answer the question “Can action based exergames that are fun to play over the long term be designed for children with CP?”
Read Resources
Determining Physical Activity Levels and Cardiovascular Health in Adults with Cerebral Palsy (Stay-FIT 20-40 years study)
In the Stay-FIT pilot study, it was determined that the physical activity level of adolescents with CP (mean age 13.5 years) was lower than that of their healthy peers. However, the vessel health was not statistically different.
Read Resources
Constraint-Induced Movement Therapy for children with cerebral palsy: Is there an impact on brain activity?
This In Brief discusses Constraint Induced Movement Therapy (CIMT), a therapy approach program aimed to improved the hand and arm use of children with hemiplegia.
Read Resources
CP-NET Meet the Expert: Neurotechnology
Dr. Elaine Biddiss and Dr. Anna McCormick answered questions about the CP-NET neurotechnology platform and a video game (Bootle Blast) that they developed to track the movement of children with cerebral palsy.
Read Resources
Current State of Stem Cell Treatments for Cerebral Palsy: A Guide for Patients, Families, and Service Providers
This resource describes stem cells in the context of cerebral palsy, and describes the current state of stem cell treatments, including an update on clinical trials and stem cell tourism.
Read Resources