CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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93 resources found
Gross Motor Function Measure (GMFM) New, Shortened Versions – Move & Play
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
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Genomic Copy Number Variation in Cerebral Palsy
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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Genetic Factors in Cerebral Palsy
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
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Family Life – Move & Play Study
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
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Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
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Encouraging Participation In Physical Activities For Children With Developmental Coordination Disorder
Parents of children with DCD are often confused and worried about their child’s lack of interest in physical activity. Parents, teachers and coaches may mistakenly label these children as lazy and unmotivated.
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Dynamic Systems Theory: A Framework for Exploring Readiness to Change in Children with Cerebral Palsy
Dynamic Systems Theory (DST) is a theory of motor development that can be applied to the management of children with Cerebral Palsy.
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Disability and Child Development: Integrating the Concepts
The purpose of this Keeping Current is to review the concern that, rather than being integrated, these two streams (“development” and “disability”) of thought have traditionally run more or less in parallel.
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