Resources

90 resources found

Finding Community: Social Media for Families of Children with Disabilities

Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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Family Life – Move & Play Study

This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
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Genomic Copy Number Variation in Cerebral Palsy

Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Focus on Function

The Focus on Function Study will compare two treatment approaches (“child-focused” and “context-focused”) that are currently being used for children with cerebral palsy and other developmental and motor delays.
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