‘Hemiplegia’, ‘hemiparesis’, or ‘unilateral’ CP affects the movement and muscle tone on one side of the body, although often the other side of the body may be affected to a lesser extent.2 It is the most common form of CP.
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Gross Motor Ability Estimator (GMAE-2) Scoring Software for the GMFM
The GMAE-2 is a software package for scoring the Gross Motor Function Measure (GMFM). Like the original, it provides an interval-level measure of gross motor function based on a child’s score on the items of the GMFM.
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How Does Clinical Research Work? A two-part Primer. Part 2: How to Do a Study, and What Should We Measure?
Part 2 focuses on issues in outcome measurement and generalizing findings from one study to the next.
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Gross Motor Function Measure (GMFM) New, Shortened Versions – Move & Play
The Move & PLAY team developed a new, even shorter method of using the GMFM: the GMFM-66 B&C. It uses a “basal and ceiling” approach; child is assessed using items that range between the easiest and most difficult levels of his or her abilities; accurate scores can be obtained using as few as 15 items
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Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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Genomic Copy Number Variation in Cerebral Palsy
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Family Life – Move & Play Study
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
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Focus on Function
The Focus on Function Study will compare two treatment approaches (“child-focused” and “context-focused”) that are currently being used for children with cerebral palsy and other developmental and motor delays.
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Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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Genetic Factors in Cerebral Palsy
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
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