In this video, Jessica (a community advisor on cerebral palsy research and person with lived experience) and Jan Willem (a clinician researcher studying cerebral palsy) tell us about cerebral palsy, some of the misconceptions that surround it and what we can do to tackle them. Produced by the Ontario Brain Institute for Brain Awareness Week 2017.
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36 resources found
Meet Our Heroes
Meet Hunter and Mussa, two little boys who communicate nonverbally.
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Letting go (at least a little bit)
Jan Willem Gorter discusses teens in transition in this video produced by the Cerebral Palsy Foundation. What do you do to encourage your child’s independence?
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Learning about the Benefits of Microboards: Danny’s Story
This was a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
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Handling Stares and Stigma
What social stigma do nonverbal people face today? How can we learn to better communicate?
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Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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Genetic Factors in Cerebral Palsy
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
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F-words Knowledge Hub
In 2011, Dr. Rosenbaum and Dr. Gorter published a paper titled: “The ‘F-words’ in Childhood Disability: I swear this is how we should think!” Inspired by over two decades of CanChild research and continual discussion amongst members of the CanChild family, the paper features six F-words that…
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DMCN Author Podcast | Autism Classification System of Functioning: Social Communication (ACSF: SC)
Peter Rosenbaum and Briano di Rezze discuss autism, social communication and the Autism Classification System.
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