Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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34 resources found
Genetic Factors in Cerebral Palsy
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
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FOCUS
Focus on the Outcomes of Communication Under Six (FOCUS © ) is a clinical tool designed to evaluate change in communicative-participation in preschool children. ‘Communicative participation’ is the child’s communication and interaction in “real world” situations at home, school, or in the community
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F-words Knowledge Hub
In 2011, Dr. Rosenbaum and Dr. Gorter published a paper titled: “The ‘F-words’ in Childhood Disability: I swear this is how we should think!” Inspired by over two decades of CanChild research and continual discussion amongst members of the CanChild family, the paper features six F-words that…
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CP-NET Meet the Author: Amanda Leduc
CP-NET was thrilled to have disability advocate and author Amanda Leduc, speak on her book ‘Disfigured: On Fairy Tales, Disability, and Making Space’. Watch her talk about storytelling as a means of challenging ableism and celebrating all people. Followed by her…
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CP-NET Meet the Expert: Transition
Dr. Elaine Biddiss and Dr. Anna McCormick answered questions about the CP-NET neurotechnology platform and a video game (Bootle Blast) that they developed to track the movement of children with cerebral palsy.
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Creating the MPOC, Part 2: Validation of a measure of processes of care-giving
This cross-sectional study continued a multi-year program of research conducted to understand the relation between caregiving offered to parents of children with neuro-developmental disabilities and parents’ mental health
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CP-NET Meet the Expert: Neurotechnology
Dr. Elaine Biddiss and Dr. Anna McCormick answered questions about the CP-NET neurotechnology platform and a video game (Bootle Blast) that they developed to track the movement of children with cerebral palsy.
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CP-NET Webinar: Covert (and Overt) Attitudes Toward Disability
This webinar discussed the importance of ‘attitudes’ toward children, youth and adults who live with impairments in physical and/or cognitive function
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Complementary and Alternative Therapies (CAMs): What are the Issues and Why are they so Heated?
Complementary and alternative medicine (CAM) is the term for medical products and practices that are not part of standard care. This webinar was presented by Dr Peter Rosenbaum on behalf of CP-NET.
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