Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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100 resources found
Genomic Copy Number Variation in Cerebral Palsy
Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Family-Centred Service in Ontario: A “Best Practice” Approach for Children with Disabilities and Their Families
Family-centred service is a philosophy and method of service delivery that: recognizes parents as the experts on their child’s needs; promotes partnerships between parents and service providers, and supports the family’s role in decision making about services for their child.
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Family Life – Move & Play Study
This report focuses on what parents told us about their families at the 2nd session (a telephone interview). We asked about many different things, for example: family activities, the supports that families have in caring for their children, and the home environment.
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F-words Knowledge Hub
In 2011, Dr. Rosenbaum and Dr. Gorter published a paper titled: “The ‘F-words’ in Childhood Disability: I swear this is how we should think!” Inspired by over two decades of CanChild research and continual discussion amongst members of the CanChild family, the paper features six F-words that…
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Enhancing Fitness, Adaptive Motor Function, and Participation of Children with Cerebral Palsy Classified in Levels IV and V
This report will address adaptive motor function of children with cerebral palsy. Adaptive motor function enables performance of activities in daily life despite limitations in motor control of posture and movement.
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Dynamic Systems Theory: A Framework for Exploring Readiness to Change in Children with Cerebral Palsy
Dynamic Systems Theory (DST) is a theory of motor development that can be applied to the management of children with Cerebral Palsy.
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Disability and Child Development: Integrating the Concepts
The purpose of this Keeping Current is to review the concern that, rather than being integrated, these two streams (“development” and “disability”) of thought have traditionally run more or less in parallel.
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Developmental trajectories of youth with disabilities, ages 12 to 25 years
This project was initiated and funded by the Ministry for Child and Youth Services (MCYS) in Ontario. The results of our synthesis have been used for the ministry’s development of a Youth Policy Framework, named stepping stones.
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Early Identification: Are Toddlers with Speech/Language Impairments at Increased Risk for Developmental Coordination Disorder?
Some children with speech/language impairment show delays in their ability to communicate, which are not due to any sensory, intellectual or neurological disorder.
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