The Measure of Processes of Care (pronounced “em-pock”) is a well-validated and reliable self-report measure of parents’ perceptions of the extent to which the health services they and their child(ren) receive are family-centred.
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Motor Growth Curves
GMFM scores of a sample of over 650 Ontario children with cerebral palsy with varying GMFCS levels have been used to create five Motor Growth Curves.
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Letting go (at least a little bit)
Jan Willem Gorter discusses teens in transition in this video produced by the Cerebral Palsy Foundation. What do you do to encourage your child’s independence?
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Learning about the Benefits of Microboards: Danny’s Story
This was a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
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Handling Stares and Stigma
What social stigma do nonverbal people face today? How can we learn to better communicate?
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Gross Motor Function Measure (GMFM)
The Gross Motor Function Measure (GMFM) is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy.
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GMFCS – E&R
The Gross Motor Function Measure (GMFM) is a clinical tool designed to evaluate change in gross motor function in children with cerebral palsy.
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Gross Motor Ability Estimator (GMAE-2) Scoring Software for the GMFM
The GMAE-2 is a software package for scoring the Gross Motor Function Measure (GMFM). Like the original, it provides an interval-level measure of gross motor function based on a child’s score on the items of the GMFM.
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Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
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Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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