Resources

101 resources found

Genetic Factors in Cerebral Palsy

Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
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Genomic Copy Number Variation in Cerebral Palsy

Scientists have identified many genes involved in neurodevelopmental and neuromuscular disorders, such as autism and muscular dystrophy. This study’s goal was to investigate whether changes in genes could also have effects that result in cerebral palsy (CP).
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Finding Community: Social Media for Families of Children with Disabilities

Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.
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FOCUS

Focus on the Outcomes of Communication Under Six (FOCUS © ) is a clinical tool designed to evaluate change in communicative-participation in preschool children. ‘Communicative participation’ is the child’s communication and interaction in “real world” situations at home, school, or in the community
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F-words Knowledge Hub

In 2011, Dr. Rosenbaum and Dr. Gorter published a paper titled: “The ‘F-words’ in Childhood Disability: I swear this is how we should think!” Inspired by over two decades of CanChild research and continual discussion amongst members of the CanChild family, the paper features six F-words that…
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