A CP-NET webinar presented by young adults with cerebral palsy who share about their journey from child to adult health care.
Traffic Lights Model for Cerebral Palsy Interventions
Professor Iona Novak answered several questions about the State of the Evidence Traffic Lights 2019 systematic review on interventions for preventing and treating cerebral palsy in children.
Selective Dorsal Rhizotomy (SDR) Webinar
This CP-NET webinar allows you to meet the experts on Selective Dorsal Rhizotomy (SDR), highlighting frequently asked questions and practical information. All information is presented in plain language by a panel that includes parent, doctor, therapist, and researcher perspectives.
Pain Prevention and Treatment in Children and Young People with Cerebral Palsy
Pain in children and young people with cerebral palsy is under-recognized and can have a serious impact on quality of life. The webinar is appropriate for anyone who wants to learn more about pain in children and young people with cerebral palsy.
Patient Engagement in Research: The value and impact of genuine partnership
This CP-NET Webinar was on Patient Engagement in Research: The value and impact of genuine partnerships.
Mental Health in Adolescents and Young Adults with Cerebral Palsy
This workshop, led by Dr. Jan Willem Gorter, explores the preliminary findings from the MyStory study, provides resources to help cope during COVID-19, and shared strategies framed around the F-Words on how to stay active and engaged!
Learning about the Benefits of Microboards: Danny’s Story
This was a qualitative research study intended to increase the understanding of children with Developmental Coordination Disorder (DCD) by examining the observations and experiences of their parents.
Growing up with CP: Mental health & well-being
CP-NET is excited to present “Growing up with CP: Mental Health & Well-being,” a webinar initiated and led by young adults for young adults. Highlighting both lived experience and recent research from the CP-NET MyStory project, this webinar will explore the intersection of mental health and CP, and discuss how we can better support young people in developing positive outcomes in mental health and well-being.
Genetic Factors in Cerebral Palsy
Recent headlines about the role of genetics in cerebral palsy may have you wondering how studies in genomics might affect your day-to-day life, clinical practice or research. Topics covered by the webinar include an overview of the human genome, how it can vary from person to person, what this has to do with CP & where this might lead
Finding Community: Social Media for Families of Children with Disabilities
Disability is a culture of identity to which parents aren’t given a handbook, and families of children with disabilities often experience significant stress and feelings of isolation. Social media can be an excellent tool for connecting with other families to share lived experience, support, resources and mentorship, while the accessibility of social media can bridge the barriers of geographic distance and rare diagnoses.